Tag Archive: Donate Life

Facing the Future


A new year has begun though the memories of the past 11 months linger – rightfully so.  A significant loss, so tragic, so sudden, as the loss of my mother, will take many moons to heal. I’m accepting of this.  I am still grieving my her – everyday is a new day and every breath is a blessing . It seems like yesterday we talked on the phone planning her trip to New Orleans in February.  She never came and my heart still aches for one more conversation, one more hug, one more laugh, one more dance…

Everything is different.  When Mom left her physical body I felt a piece of my soul travel with her.  And that shred of soul was replaced with my universal potential hugged by my mother’s spirit – and I was reborn.


The week of her death I was feeling more than I’ve felt at any one time in my life.  I was born into grief, again, and I had the feeling I felt this before.  Perhaps I experienced this after my father’s and my accident in ’84 or maybe it was from another life. Either way, I verbalized this intense feeling to everyone who came to visit me the week before her memorial service (a week after she passed on).  As much as I was in my mind and above, I was consumed with new physical bodily sensations. My mental image of my physical body was not my own – it was my mother’s – specifically her face.  I remember it vividly and luckily instead of keeping this all consuming feeling inside I shared it.  I never felt so present.  I was able to sit and listen, hold space energetically for people who came into our house, and articulate all that I was feeling while simultaneously feeling that if I looked into a mirror I would see my mother, not me.  Never did I get a shocking response or a weird look when I shared this sensation with those I trusted; it was as if they understood.  Anyone who knew the type of relationship my mother and I had didn’t need an explanation.

Reflecting Orphan

My mother made life comfortable for me by being the loving, nurturing, supportive, and giving person she was. Some may see this relationship as very co-dependent but I saw her as my companion. We shared our experiences and did everything we could to help each other when we were in need. We talked about the state of the world, family frustrations, relationships, finances, work, friendly gatherings, movies… life.  Both my mother and I never sought out therapy until a year before her passing.  Through therapy she was better able to understand her emotional pain and received validation for her sensitivity.  I always though that one day I might have to take care of her – and that was ok.  She took care of a woman with severe cerebral palsy who was developmentally 2 years old for 18 YEARS!  Can you imagine?!  I would have never sent my mother to a nursing home or assisted living.  I had this idea that I would make it work and I would take care of her for the rest of her days.  I also thought there would be a lot of time in between but I also know that time flies in the blink of your eyes.  I had the opportunity, a year before I started grad school, to move down south to New Orleans.  I took it.  I wanted to be more independent and I didn’t want to regret staying in Massachusetts forever (though I do love MA).  While I was down there I would only talk to my mother a couple times per week (which was a lot less than usual).  At one point she bought an iPhone and we started video chatting.  This felt right.  There was a healthy separation now and I couldn’t wait to live close to her again when it was time to return to school.  We spoke about our future and dreams of one day buying a house in New Orleans when I was opening my expressive therapy community centers after graduation.

Peas in a Pod

Right as our relationship was about to blossom,  she was gone, in an instant.  My mother and I lived for one another. She was taught the “life’s too short” lesson at 27 years old when she lost her husband, my father, to a drunk driver.  Why?  When I first heard the words “there’s nothing else they can do” at the hospital on February 12, 2013, I stood up, threw my arms in the air and exclaimed loudly, “WHAT FUCKING HAND WAS I FUCKING DEALT HERE???”  I was in the company of people/family I had known my whole life and though it was shocking for some to hear those words come out of my mouth I questioned why another precious person in my life was taken so soon.  I felt so alone.

I’m beginning to realize that these experiences were all supposed to be.  It doesn’t make my life any easier to say this but it’s medicine for my heart and mind.  I carry on day-to-day and have an amazing amount of support from my core group of friends (famibly) and others (some who were not in my life until this tragedy hit) – I’m thankful for these souls everyday.

What’s next?

I’ve spoken of my mother and her selfless gifts or organ and tissue donation in front of millions of people and will continue to be an advocate for organ donation and will promote living your life with love and compassion. I’m documenting my grieving process in order to help others who feel the physical and psychological pain of loss through coping exercises and validation that everyone’s process is different and natural to only the person suffering.  How do we move through it?  I’m discovering new formations everyday.  I will finish grad school and use my gifts to nurture and heal those I’m capable of helping. I will put my energy into being the agent of change I know I am. I’m one week away from giving a TED Talk  at Greenwich Country Day School and am honored they chose me.  My audience will be predominently 6th graders!  I’m not sure if that makes it easier or harder to write it.  The session will be filmed and I promise to post the link when it’s time.

As I face my future I know one thing is for certain: all we have is now.

All We Have Is Now


I Am Here and She is Everywhere

My Family 11.26.82

I started this email blast well over a month ago, revising it every time I came back to it. Forgive me for my lack of communication.  You’ve been on my mind and in my heart.

a) I’ve never been busier in my life; b) Tasks that used to come so easily seem to take a lot longer to accomplish this year; and c) I’m running on fumes.  My heart is still very raw and I’m still getting used to life without my mother as well as getting used to being in the public eye talking about her – the woman she was and the gifts she left behind.

This takes a lot of energy… but I am trusting the process.

Trust the Process

Yesterday was my birthday.  I turned 31 (thirty-one-derful according to my friends) though I feel I aged 10 years this year.  Honestly, there is much to be grateful for and this birthday I was again reminded of the immense amount of love and support I have from friends and family near and far.  My 31st trip around the sun consisted of talking to my best friend and Fairy Godson in New Orleans, cleaned the house immaculate, created art and dedicated it to my loved ones, took over a section in a local club (Lizard Lounge) with 15 of some of my favorite people and danced the night away to one of my favorite bands, Session Americana.  It was truly a soul fulfilling day/night. Even the times I broke down and cried, I found it healing to not hold back my grief and tears.  I miss my Mom and my both my Mum and Dad are heavy on my mind this birthday.

Sidebar – I suggest taping your parents, children, and/or someone who is special to you singing the “Happy Birthday” song.  I did and I’ll cherish it forever.

For YOU From Moi

November 12th marked  nine months since my mother left this earth to carry on her agenda in her divine realm.  How fast the time has gone.  It still feels like yesterday when she and I spoke about what to pack for her visit to New Orleans.  She was planning on leaving three days after she died to spend a week in my new apartment •*¨*•.¸¸❤¸¸.•*¨*• Life.

 As you most of you know, so much has happened between her passing and now.

I started grad school at Lesley University this fall studying Dance Movement Therapy.  This  is a profession I was born to do and both my mother and I knew it even before I was accepted.  I’m enjoying the material and the process of healing myself through authentic movement.  I’m just at the beginning stages of detailed intensive case study on myself that I hope will help others who have had significant losses in their lives process their grief through body-centered therapies as well as other mindful exercises such as controlled breathing, writing, visual art, yoga, and more.  My own grieving process feels very natural.  No medication, a lot of crying, and sharing publicly and in group therapy settings.  I never knew it could be so healing.  Though the interviews can be emotionally draining hours later, I love talking about my mother …the resilient, hard-working, selfless woman she was…

Flower Mamas

I’ve had the opportunity to share my experiences with donating my mother’s organs and tissue dozens of times and am still filling my calendar with speaking dates for the next few months.  Below you will find a list of publications who covered Carmen Tarleton and my mother’s story since Carmen revealed her new face to the world.  Balancing interviews and school is challenging but I’ve managed to keep my composure and keep up with school work.

♬♪ Radio Interview 

NPR’s All Things Considered with Melissa Block 

✿~`~,~~Video Interviews~~,~`~✿

The Katie Couric Show

Press Conference ~ Carmen Reveals Her New Face 

Voice of America Interview 

The Verge (Article and Video)

Al Jazeera America (still waiting for the DVD to arrive in the mail – not online)

German TV (N/A)

German TV Shot

Chronicle is planning a 30 minute segment as well…

Printed Interviews

Daily Mail UK (very thorough)

NY Times 

Reader’s Digest – 20 page article – publication date pending (soon)

NY Times Magazine“The Lives They Lived” tribute

This story was picked up by publications all over the world.  The Daily Mail Online was the best out of the dozens I read.

Speaking Opportunities

New England Organ Bank – Training for new representatives

New England Organ Bank – Conference for ICU Nurses and Hospital Staff

UMASS Worcester Hospital – Nursing Professional Development Department


I knew that my mother helped many people, though I thought it was close a dozen.  I just got word today that I was off by 200!!  My mother’s beautiful and healthy body helped over 200 people.  This brings me comfort in knowing she has helped so many:

  • Liver
  • Left and Right Kidney
  • Facial graft
  • Heart for research
  • Bone: 194 grafts produced, 190 distributed to the following states/country:  Maryland, Massachusetts, and Utah; also to South Korea.
  • Skin: 13 Grafts Produced / None have been distributed yet to date / All Grafts will be used for Breast Reconstruction Post-Mastectomy.

My mother is famous. So famous, in fact, right now a flora-graph is being created in her honor for the 125th Rose Bowl parade in Pasadena California on New Years Day.  Her portrait will be made up of organic materials, such as flowers, coffee beans, and seeds.  It is then mailed out to Cambridge MA where, on December 17th, I’ll be hosting a ceremonial decorating party for my mother at The Dance Complex to place the finishing touches on the flora-graph.  It is then mailed back to be placed on the Donate Life Rose Bowl float.  Donate Life is flying my sweetheart, Brian, and I out to participate and pay tribute to my mother.

Read her bio and find out how you can pay tribute by dedicating a rose to be placed on the float.

Mom Rose Bowl

If you’d like to see the slideshow I made for Mum’s memorial service click below:

My Mother is Love

For all of you who sent sympathy cards, I know I’ve told most of you in person how much your words truly meant to me.  I do plan on reading them all again and taking time with my “thank you’s” and one-by-one you’ll all know how I truly feel.  I will keep your words close to my heart as the days pass.

Since it’s Thanksgiving, I would like to share a few things that I am grateful for.  A list I should carry around with me as a constant reminder.


  • The 30 years I had with my mother.  Through all of our experiences we knew we had each other to lean on.  I am proud to to be her child and proud of the way I was raised.
  • My cat Chai Love.  A big ol’ tiger cat that loves unconditionally and doesn’t know how much he has changed my life.  Great traveling buddy, I might add.
  • My supportive and loving boyfriend, Brian.  He challenges me, makes me laugh, and is extremely helpful in so many situations. I love you.
  • My life long soulmate friends I have here in Cambridge/Somerville.  Words cannot express how honored I am to be in your lives.  You beautiful, positive, creative and supportive spirits inspire me everyday.
  • My family members who were always there but not close, who then became a positive loving light in my life when I felt like I was drowning. I love you so much.
  • My new friends post-Mom’s passing.  I cannot wait to spend more quality time with you and learn your stories and dance with you.
  • The very few high school friends and MCLA friends I still have who continue to amaze me as I lurk around on your facebook pages ❤ I miss you.
  • My friends down in N’awlins. You show me how to let go of my inhibitions and be my funky self.  I love your city.
  • The Good-Stone’s. I must single out my FAIRY GODSON, Alexander Jazz. MeMe love’s you. EMJ ❤
  • Letter’s I receive from strangers moved and inspired by my mother’s story.
  • Carmen Blandin Tarleton. Need I say more?
  • Norma Canner – the founder of Lesley’s Dance Therapy program.  You have paved a way for me to follow my dreams of helping people, young and old, express their playful creative natural selves and, in turn, heal themselves.  To start a movement through movement.
  • My apartment (almost 6 years in the same place) and my roommates.  We tell each other all the time how much love we have for one another.  We’re quite lucky.
  • My mobility.  I don’t take for granted that I can twirl and bounce.  I’m blessed to have these big hips, tiny feet and hands, and a head that can whip around while I dance.
  • ♪♫•*¨*•.¸¸❤¸¸.•*¨*•♫♪Music♪♫•*¨*•.¸¸❤¸¸.•*¨*•♫♪ The universal language.
  • Easily accessible food options.  Again, we’re very lucky.  Food is love and comfort.
  • Kind hearted and selfless people who do what they can to help others when they’re in need by reading the signs, using common sense, and who believe in you because they see you.
  • My mother’s friends.  I feel your love and I know how much she loved you all.

I think that’s all the energy I can give in one blog.  I do plan on writing a year review before the new year which will include our summer road trip with Mom’s ashes, family visits, and more…

Write to me.  Call me.  Send telepathic messages. And I hope to spend some quality time with you all in the new year.

Gratitude ☆*:·. Choose happiness…

Marinda SnowMarinda Snow Righter


Organ donation is usually the last thing on the minds of those who have lost someone suddenly.  I know it was for me.  But I am here today to share my experience and the impact it’s had on my life.  There’s absolutely nothing that anyone can do to prepare for a loss such as this.  But there were certain people who helped guide me through those last moments in my mother’s physical presence. They listened, heard what was unspoken, and showed compassion.

The week leading up to “the phone call” was Carnival down in New Orleans (also known as Mardi Gras). I had been living there for only 4 months and looking forward to my mother’s visit the following week.  My boyfriend Brain was visiting for his very first Mardi Gras.  We were having the time of our lives.  On Lundi Gras night I got a voicemail from my mother telling me she had a bad headache “which never happens. I think I’d feel a lot better if I heard your voice”, she said.  It was very late when I got the message and I was babysitting my Fairy Godchild at the time, so I would call her in the morning. I never got to call her back.

After 9 hours of travel we arrived at UMASS Worcester on Mardi Gras day.  It all happened in slow motion after this.  We entered into a room full of somber family members and there was my mother, laying there peacefully in a hospital bed hooked up to all sorts of tubing.  I still didn’t know then, or perhaps I was in denial, that “there’s nothing else they can do”.   I stood there looking at my mother in disbelief.  Though the room was packed, it was just her and I.    I told her she looked beautiful (which she surprisingly did after having a massive stroke).  I then took out the two stuffed Grateful Dead “Dancing Bears”, which we bought on our first road trip to Colorado when I was 16 years old.  They were our good luck traveling bears.   I laid them on her bed along with a framed photograph of her and my father from the day of their wedding.


  My sweetheart, Brian, took out his ipod and proceeded to play her “Brokedown Palace”. I closed my eyes imagining her dancing around with that bright and contagious smile of hers.

“River going to take me, sing sweet and sleepy,

Sing me sweet and sleepy all the way back home.

It’s a far gone lullaby, sung many years ago.

Mama, mama many worlds I’ve come since I first left


A transformation was in progress and I was right there dancing with her.


Most of our experiences we cannot control.  Scary thought, right?  I never want to hear those words, “there’s nothing else they can do” again, but if I have to endure that pain over, I can only trust and believe that “this is for a reason” and there is support in place to help me cope with such an immense loss.


I accepted the reality of the situation and naturally wanted to move forward and not dwell.  I wanted to move through this heartbreak; through this deep sadness.  The only way out is through, right?  I kept reminding myself to breath and to do everything that felt natural for my body even if that meant laying on the cold hospital floor.  In that hospital room, a piece of me died while simultaneously being reborn; truly cathartic experience that would change my life forever.

The death of my mother was unfathomably painful.  My mother, my best friend, my soul mate, my everything, was moving onto bigger and better things; going on a journey I couldn’t follow her on (so I thought at the time).

Though I was still very much in a state of shock I conjured up enough strength to make decisions in a rational manner.  What would my mother want?  Like I said, we were one in the same, so the decisions were not “hard” to make, but they were nonetheless heartbreaking.  What made this emotionally

draining process a little easier was that little “❤” on her license.


Of course she was an organ donor!  That was so Mom; a selfless human being – a giver.

The staff at the Worcester Hospital was truly kind; changing my view of hospitals forever.  My family’s experiences at hospitals have never been positive; misdiagnoses, insensitivity, and a lack of empathy.  My mother was more Eastern in her beliefs, as am I, but Worcester went above and beyond to make us all comfortable. I felt blessed to be guided by some gentle souls through this process.  I was warned that the organ donation process was long but we could break at any time.  There were times I needed to lay down on the floor, stretch out my back, and breathe deep.  No one questioned that.  They were actually very attentive.  The hospital staff allowed me to hop in bed with my mother where I snuggled, held her hand, and napped by her side.  Knowing I was going to be there for a little while, they made us all feel very comfortable.  One nurse asked if she could put on Pandora’s “Grateful Dead” channel (one of my mother’s favorites).


When I awoke, there were more emotionally draining decisions to be made.  But I continued to feel the support.

My first angel organ donor rep, Denise ❤, was warm and nurturing.  I remember her kind eyes and calming smile.   When she arrived at the hospital there was no sense of urgency.  Filling out the forms, she said, could be very arduous task but kept reiterating that it’s perfectly normal to take a break.

Half way through, though I told her I was all right to go on, she read that it was time for a small break.  She took that opportunity to use the bathroom.  As soon as she left the room, I dropped to the ground and started stretching my body.  I was a struck with grief and I appreciated that small break.  When she came back in, Denise made sure I was all right (I think I may have worried her a bit) and we proceeded to fill out the papers.  My whole experience at the hospital was such a blur, especially at 1AM, but I remember Denise caring and I felt connected to this stranger.  She asked me who I was; and truly wanted to know.  I made a friend that night.

I thought the morning would never come.  I was advised by family and staff to get some sleep.  Tomorrow was going to be a long day.  When I awoke all I wanted to do was to lay down next to my mother.  My dear, sweet, peaceful mother who looked just as peaceful as she did the day before.  The nurses were kind enough to make space for me.  I climbed into her hospital bed, held her hand and fell asleep again.


Not long after I was gently awoken and politely asked if I could get up; they needed to administer some tests.  As if on cue, my 2nd New England Donor Bank ANGEL, Dan ❤, entered the hospital room with grace.  He introduced himself and told us that he was here to support and guide us through the next phase.  Whatever this meant, it was going to be ok.  I trusted him.  He asked me if I’d like a few clay moldings of my mother’s hand.  “YES! We can do that?!” After we finished four of them, he asked if I would like a lock of her hair.  “YES! GOD YES!  I would have never thought of this.”  She liked to straighten her hair but I found a natural curl that I now keep in a bottle on my shrine.  Lastly, he asked me if I’d like her EKG papers.  He proceeded to give me four triangular glass bottles filled with her heartbeat.  What beautiful gifts.  I really didn’t know what to say.  Thank you, Dan.  I’ve created the most beautiful shrines and am looking forward to creating a “shadow/memory box” full of Mother Love.


It was a long ride home from the hospital.  After barely making it up the stairs I pulled myself into bed and grieved my immense loss.   No more than 5 minutes later my house started to fill up with many loving friends.  All of them knew my mother.  I proudly shared her with my community of friends woven together by the local Cambridge/Somerville music scene.  They all welcomed her with open arms.

Dan called me a couple hours into this impromptu love fest.  I excused myself, and with Brian by my side, I took one of the most significant phone calls of my life.  He told me about this fairly new procedure that allowed those whose faces had been severely disfigured by traumatic events to have quality of life by receiving a facial transplant.  He couldn’t tell me who it was for, but he said my mother was a match and her beautiful face and skin could be the greatest gift ever given.  Without hesitation I said, “Yes, of course”.  It’s a decision I would want my family to make for me, and what my mother would want me to do.  As he explained what was to happen next, I couldn’t help but stare at this oversized Anatomy book that happened to be facing me on the floor.

My only question was, “is this person going to look like her?”  He explained that everyone had their own unique facial structure and it would mold to their face.  So, it was done the next morning… on Valentines Day.


I would be here for another hour if I started talking about Carmen.  Carmen.  Beautiful, inspiring, resilient, brave, Carmen.  I think we both feel equally as lucky to be in each other’s lives.  Our bond is strong and I feel will only strengthen over time.  Their connection, my mother’s and Carmen’s is, well, ineffable.  Love fueled and on another plane.

Eight months have gone by and there’s not a day that goes by when I don’t think of her.  Every day is mother’s day.  Grief sure does come in waves.


My mother and I have experienced so much loss in our lives.  The hand that we were dealt was not an easy one.  But the key players in your life are those who are around, supporting you however they possibly can, when all feels lost.

I think of all of the angels who guided me in that hospital – ICU Nurses and Organ Donor Representatives alike.  You, as health care professionals and organ donor representatives are in a unique position.  You are present for a life altering experience for those closest in the hospital to those passing on.  It’s a major transition that families are entering into without much guidance.  Without knowing how to feel and just feeling it all.

You have the ability to guide families into making selfless and life-changing decisions, which will, in turn, give life to someone else.  What an incredible opportunity.  The key is to hold that space for people by allowing them to grieve and showing them empathy.  It’s amazing how a little eye contact can bring so much comfort.


Show your light.  Be a guiding light.  You have the ability to lead these grieving souls out of complete darkness, if only for a little while, by being genuine – by being human… and, sure, a little hand molding kit, a lock of hair, and a few bottles full of heartbeats can’t hurt.

Thank you.